Monday, January 19, 2009

End Endo with a hysterectomy (TMI, men beware!)

I wirte this to allt he endo sisters out there who are suffering this horrible fate. Endomitroisis is a horrible disease.

I had severe stage 4 endo and adeno involving ovaries, bladder, culdesac and colon. I was missing work 1-2 days a cycle (monthly). I had had 3 laperotomies to excise endo and it always came back within 3 months, I tried Depo one year and side effects were so bad I stopped and refused to use any other medication therapies.

I ended up deciding to have a TAHBSO at age 35- not having children successfully yet it was a difficult decision. Because my wonderful husband agreed to foster to adopt with me in order to make our family, I was free to get a hysterectomy and stop hoping for a miracle pregnancy. The first surgery was unsuccessful, they could only get out parts of the disease. After I required 3 pints of blood transfusion, and 6 hrs into surgery later, they decided to sew me back up, leaving about 1/3 of my 'parts' still in me! UGH.

They referred me to a local gynocological oncologist specialist. Before my next surgery 6 mos. later, I still had cycles and still had pain.

This new (awesome) Dr. decided I must still have some ovarian tissue left in me. She put me on clomid to swell the remnant particles, so she could see them in my next surgery. I woke up from that surgery finally uterus-less (YAY) and apparently she gotten all of the disease out, because I have been completely symptom free for nearly two years now.

I am amazed and thrilled to have my life back. I never thought it would be "GONE".

You should not stop searching for relief if you have endo or suspect it. Do not accept that you must suffer in silence. Find a Dr. who is caring, will listen, and knows how to treat endo. It may not be curable but it can be treated.

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